We reached a milestone today

Sorry that it has been so long since we have given you an update. I went back to work on Monday and my evenings have been busy with Tom. Sean moved in with us last weekend (God bless him) and has been staying with Tom during the day. At first they had a few issues. They had to decide the best way to get daily tasks accomplished. Tom hated to bother Sean while he was working, but he is so weak, it takes him a long time to manage the simplest task like putting his socks on. Tom has finally has conceded that in the interest of concerving his strength, that he will ask for help when he needs it.

As of today, Tom has completed 1/3 of his treatments. He still continues to be handling them well. The Doctor has decreased his steroids again and he is now only taking 1 1/2 daily. This is down from 4 when they first put him on them. We are very hopeful that by decreasing the dosage he will begin to recover some of the strength that he has lost. He also has a new prescription to try and decrease the swelling in his feet. We are keeping our fingers crossed that he continues to do well with the decrease in the steriods. If he starts to have headaches or God forbid seizures, we will have to increase the dosage.

Unfortunately, he continues to loose weight. His appetite is good and he is eating well, but the treatments are causing the weight loss. We are feeding him cake and ice cream and anything fattening that we can think of. After years of watching what he was eating, it is hard to get in a mind set to each as much fat and calories as he can consume.

We are all looking forward to this weekend when our whole family will be together. Mike and Tina are coming tomorrow and Anna will be joining us on Saturday. Tom's brother John is coming next Tuesday and we are all excited about his visit too!

Please continue to keep us in your thoughts and prayers.

Love to all,
Tom & Lynne
Mike & Tina
Sean & Anna